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Our Most-Vulnerable Veterans Need Support

February 25th, 2009 by Last

Below is an article written by Jennipher Dickens, the Communications Director for the Sarah Jane Brain Foundation, and quotes members of the Foundation's National Advisory Board. The article discusses young veterans returning from Iraq and Afghanistan with traumatic brain injuries and the concerns many on the Foundation's National Advisory Board have expressed. The article states how we must address young veterans with developing brains suffering from traumatic brain injuries and distinguish them from veterans with developed brains who also happen to be in completely different life stages. I urge everyone to read the article below:

OUR MOST-VULNERABLE VETERANS NEED SUPPORT
By Jennipher Dickens

After Vietnam, a vet being "shell-shocked" was the common diagnosis. With today's Iraq and Afghanistan wars, it is traumatic brain injury (TBI).

Unfortunately, the heroes who choose to serve our country have a high risk of sustaining a TBI while defending it. Last September, the United States Department of Veterans Affairs acknowledged for the first time that a significant number of Iraq and Afghanistan War veterans were in fact suffering from brain injuries.

Numbers released at that time showed that of the veterans who had been screened, 20 percent showed symptoms of a brain injury. Blast injuries - caused by explosions such as those from car bombs - have been common among U.S. soldiers throughout the Middle East since the fighting began in 2003.

"Traumatic brain injuries are often insidious but always devastating. Those few among us who wear the cloth of the nation deserve our thanks and admiration, to be sure, but they also deserve the best care we can provide," Retired U.S Army Colonel and Medal of Honor recipient, Jack H. Jacobs said.

What most people don't realize is the vast difference between TBIs sustained by older soldiers as compared to younger ones - and in the Iraq/Afghanistan war, far more younger soldiers are being killed and seriously injured than their older counterparts.

Dr. Ron Savage, President of the North American Brain Injury Society, explained, "Too many people lump all veterans with TBI into the same category, but the truth is an 18-year-old veteran who sustained a TBI from a blast injury has much more in common with an 18-year-old who was injured in a car accident than with a 40-year-old fellow vet also injured in that same blast."

Brain injuries sustained by those less than 25 years of age are considered Pediatric Traumatic Brain Injuries (PTBIs), a form of Pediatric Acquired Brain Injury (PABI), according to experts in the field of neurology.

"Young adults are included due to the fact that their brains are still developing, as indicated by biological measures such as brain metabolism and myelination as well as neurocognitive measures like executive functions or inhibitions, and social measures such as the beginnings of independence, transition to adult privileges and responsibilities," noted Dr. Christopher Giza, who is an Associate Professor in the Department of Neurosurgery at the David Geffen School of Medicine at UCLA and Mattel Children's Hospital.

Both Savage and Giza, along with more than 50 other top medical professionals from across the country, make up the National Advisory Board of the Sarah Jane Brain Foundation, a non-profit organization whose mission is to help children and young adults with PABIs.

Blast injuries in veterans are known to cause deficits in memory, attention and decision-making and often occur in conjunction with post-traumatic stress disorder (PTSD), depression, anxiety disorders, and substance abuse.

These issues in younger veterans with PTBI can cause problems in quite different areas as compared to adults with TBI.

"The 19-year-old veteran with PTBI faces a different set of challenges upon attempting to reintegrate into the community following an injury than does a 35-year old," stated Dr. Shari Wade of Cincinnati Children's Hospital Medical Center.

Wade continued, "While a 35-year-old might return home to a stable family system with good supports in place, the 19-year-old may be coming home to live alone - these developmental considerations must be taken into account when constructing treatment and reintegration plans for young veterans."

All veterans with TBIs - even seemingly "mild" ones - face challenges reintegrating into their communities after returning from war post-injury.

Dr. Roberta DePompei, Professor and Chairman in the Department of Speech-Language Pathology at the University of Akron, noted, "People don't understand the difference in people with TBIs from before their injury as compared to after, and this may be even more magnified with veterans. You have a group of young people returning from war, speaking and acting very differently than they were before they left, and people simply attribute it to things they saw - whereas in many cases it is actually because they have sustained a brain injury."

Veterans with TBI, particularly younger ones, also face additional challenges in reintegrating into school or work upon being discharged after returning home.

"Most colleges, universities and vocational training systems are generally not set up to support military-trained TBI vets," stated Dr. Ann Glang, Research Scientist at Oregon Center for Applied Science and Senior Fellow at the Teaching Research Institute.

"Who will be the PTBI-vet's advocate in the school system?" questioned Dr. Bonnie Todis, Associate Research Professor at the Teaching Research Institute. She continued, "This is something that desperately needs to be addressed, given the number of young brain-injured veterans now returning home."

Additionally, it was noted that current Veteran Administration (VA) out-patient facilities are not set up for the special care those veterans with PTBI require.

"There is a lack of services within the VA that target veterans with PTBI. This is a huge population constituting over half of veterans with brain injury, and there is nothing to distinguish one from the other despite that the younger and older groups clearly have different needs on multiple levels," stated Dr. Drew Davis, Assistant Professor in the Department of Pediatrics and Physical Medicine and Rehabilitation at the University of Alabama at Birmingham and Children's Hospital of Alabama.

Dr. Gerard Gioia, Director of the Pediatric Neuropsychology Program at Children's National Medical Center and George Washington University, expressed concern over whether veterans were being adequately screened for brain injuries upon being released from service.

"Many people have been pushing for better screenings of veterans after returning from Iraq, but there are worries that it is not being done properly, and we need to make sure this is done and done correctly and thoroughly to ensure these heroes are receiving the best possible medical care," Gioia noted.

Dr. David Mooney, Assistant Professor at Harvard Medical School, remarked, "We must not leave our youngest veterans' injuries unaddressed on the battlefield but instead maintain them as part of the family of TBI survivors who must band together, while still acknowledging their unique needs."

"This must be addressed in a comprehensive, integrative fashion with the rest of the TBI community, and we must also make sure the efforts to do so are evidence-based," stated Dr. Wayne Gordon, Professor in the Department of Rehabilitation Medicine at Mount Sinai School of Medicine.

Sarah Jane Brain Project founder Patrick Donohue wants to make sure that is exactly the case. He brought the above-quoted doctors and their colleagues to New York City in January to draft the 62-page National PABI Plan, which creates the proper continuum of care for children and young adults suffering from PABI including these young veterans suffering from TBI. Donohue provided the first draft of the National PABI Plan to President Barack Obama's administration on January 20, 2009.

"It is our responsibility as Americans to make sure those who fight for our freedom are taken care of, which is why it is important for veterans with PTBI to receive the best possible care," he stated.

To read the National PABI Plan in full or to learn more about the Sarah Jane Brain Project, visit www.TheBrainProject.org.

Jennipher Dickens is the Communications Director for The Sarah Jane Brain Foundation.

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Brain Injury Association of New Jersey to Host Annual Gala

February 23rd, 2009 by Last

The Brain Injury Association of New Jersey, on Tuesday, March 10, 2009, will be holding its Annual Gala at the Marriott Hanover, 1401 Route 10 East, Whippany. The Association will be honoring three guests for their contributions to the brain injury community. These guests are: Paul Anzano Esq., Steven Benvenisti Esq., and Corinne "Cookie" Slade. Each of these fine people have contributed their talents to advancing the quality of life of people affected by brain injury.
 

The Association hosted its first Gala in 2007 to celebrate its 25th Anniversary. Based upon the resounding support it received, the Association set out since to have one every year during Brain Injury Awareness Month in March. It is an opportunity each year to celebrate the services of the Association and honor individuals who have made significant contributions to advancing the quality of life for people affected by brain injury in our state.
 

You can learn more about the Gala online here. If you have any questions, please contact Jill Schulman, Senior Director of Development, at 732-745-0200 or by email Jschulman@bianj.org.

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The Sarah Jane Brain Foundation’s National Advisory Board Legal Committee

February 19th, 2009 by Last

As you may already know, The Sarah Jane Brain Foundation has quickly become one of the leading organizations dealing with Pediatric Acquired Brain Injury (PABI) throughout the nation.  The foundation is named after 3-year-old Sarah Jane Donohue who was shaken by her baby nurse when she was only 5 days old breaking 3 ribs, both collarbones and causing a severe brain injury.  Sarah Jane's father, Patrick Donohue, has quickly galvanized the leading professionals in the field of PABI to action.
 
Phase 1 of the Sarah Jane Brain Project began in October 2007 when Patrick launched the Open Source Initiative which was the first time in medical history someone's (Sarah Jane's) medical records and therapy videos were made publicly available using open source principles (they were posted at www.TheBrainProject.org).  He immediately began Phase 2 which was recruiting other families to participate in the Open Source Initiative and attracting the best in the field of PABI to join his National Advisory Board.  Phase 3 involved having the National Advisory Board develop the first-ever National PABI Plan (a comprehensive continuum of care model system).  The first draft of the PABI Plan was finalized in NYC during the PABI Conference of the National Advisory Board last month and is posted on the website.  The Board is seeking public comments through the end of next week from stakeholders in the field of PABI from around the world (I encourage you to read it and post your comments/suggestions).  Phase 4 will be Congress passing the PABI Act which will fund and fulfill the PABI Plan (Patrick's goal is to have this completed by Sarah Jane's 4th birthday in June).
 
Part of Phase 3 has been establishing a Legal Committee of the National Advisory Board by recruiting some of the best legal, regulatory and financial professionals to examine and address the many complex legal issues facing the millions of children and families dealing with PABI (criminal law, family law, personal injury/tort law, healthcare insurance/Medicaid issues, medical and bioethics law, estate planning, special education law as well as intellectual property law).  Patrick asked me to join the National Advisory Board in December and I readily accepted.  I particpated in the PABI Conference last month where more than 50 of the country's leading PABI experts gathered to draft the PABI Plan - there has never been a concentration of such expertise assembled before.
 
A significant part of the PABI Plan will be establishing a National Pediatric Brain Injury Law Clinic which will assist the children and families with their legal issues where government support services currently are lacking.  Part of the the law clinic's role will be establishing a national network of talented and committed legal professionals who understand the PABI community.

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American College of Emergency Physicians Announces New Guidelines for Mild TBI

February 17th, 2009 by Last

I read an article recently which stated that the American College of Emergency Physicians and the Centers for Disease Control and Prevention (CDC) have changed the guidelines used in diagnosing mild traumatic brain injuries. I think the revised guidelines are great, and  will only help to increase the early diagnosis of, and therefore treatment of,  the more than one million mild traumatic brain injuries suffered each year.

The actual number of brain injuries suffered each year is actually unknown, since many patients who have an injury never get medical care. The majority of these injuries are classified as mild, meaning the patient is alert, oriented and functional when they are assessed in the emergency department. The hardest part for emergency room staff is identifying which patients with a head injury have an acute traumatic injury and which patients are able to be sent home.

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Brain Injury Association of New Jersey Develops Teen Driver Website

February 13th, 2009 by Last

The prevention team of the Brain Injury Association of New Jersey is currently in the process of developing a new website for parents of new and young adult drivers. The website,  NJTeenDriver.com is being sponsored by the Division of Highway Traffic Safety and will be going live within the next 2-3 months.

As the site continues to develop the BIANJ is continually updating all of the prevention sites including their most recent website www.UGotBrains.com, which has been developed by and for new and young adult drivers. As an update to the UGotBrains site new information about the graduated driver's license (GDL) has been added that drivers may not be aware exists nor aware of the consequences if not followed.

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